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Rights to data and samples that are collected, gathered and stored within the framework of BeLOVE are subject to the Basic Data Protection Regulation (DS-GVO) as so-called health data.

Of course, medical confidentiality (§ 203 StGB), the provisions of the Berlin State Hospital Act, the Berlin Data Protection Act, the European General Data Protection Regulation and the Federal Data Protection Act are observed. Other personnel involved in the research project are also obliged to observe the duty of confidentiality, as well as to comply with the Basic Data Protection Regulation. Identifying data will not be disclosed to unauthorized third parties, such as insurance companies or employers. Should other research projects request the use of the medical data, the disclosure will be made without personally identifiable data after approval. Study data from consented studies will only be stored under a pseudonym and without personally identifying data. This pseudonym is a randomly machine-generated unique code.

The consent to participate in BeLOVE can be revoked at any time without any disadvantages. In addition, there is the possibility to decide freely what should happen with any data and samples still available at the time of a possible revocation. Here, gradations are possible, from further unrestricted use for research purposes to the destruction of all samples and/or deletion of the data from the study databases.

Data from the application-specific pseudonymized or anonymized evaluation data sets already created for scientific evaluations within the scope of research projects cannot be deleted.

The length of pseudonymized storage of study data is 30 years.

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