One focus of the QUEST Center is to promote the involvement of patients and other stakeholders in the planning, implementation and evaluation of research projects. To this end, we conduct research projects in order to better understand what high-quality stakeholder engagement can look like. To date, patients and other stakeholders have rarely been actively involved in research projects in Germany. We want to bring together various relevant stakeholders in order to strengthen and further develop stakeholder engagement in health research. In addition, we offer project-specific consulting services for those who wish to involve stakeholders in their specific research projects. Moreover, we are planning training and workshop series for those interested in the BIH research area.
If you have any questions on Patient & Stakeholder Engagement, please do not hesitate to contact us. We also welcome your suggestions and needs for further support in this area.
Here you can find information on current events and internal or external calls for funding proposals on patient and stakeholder engagement.
What is Stakeholder Engagement?
By stakeholder engagement in health research, we mean the active involvement of patients and other stakeholders in the research process. This does not include the inclusion of participants in studies, but rather that the research process is co-designed with the stakeholders.
Patient & Stakeholder Engagement Projects
Here you can find information on Patient & Stakeholder Engagement projects of the QUEST Center for Transforming Biomedical Research.
Stakeholder Engagement in the BIH research area
Here you can find information on recent and completed Patient & Stakeholder Engagement projects in the BIH research area (Charité and MDC)
Research policy and funding of stakeholder engagement in health research
While the active engagement of patients and other stakeholders in health research is already standard practice in some other countries, there is some backlog demand in Germany. However, there are some calls for proposals and funding opportunities in Germany that take into account the special requirements of engagement in research.