Quality and reporting of Patient Engagement

Patient engagement, i.e. the active involvement of patients in the research process, varies widely across studies, and little is known about the quality of engagement. High quality means that the patient engagement has the potential to increase the relevance or usefulness of a study for patients and/or the society. One important prerequisite of quality assessment is high-quality reporting to compare different forms of engagement and their potential influence on studies. We use already established tools (1,2) to analyse the quality of reporting patient engagement and the quality of patient engagement in best practice examples. 

For more details, you can find the protocol of the study here.  


  1. Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017 Aug 2;358:j3453.

  2. Wright D, Foster C, Amir Z, Elliott J, Wilson R. Critical appraisal guidelines for assessing the quality and impact of user involvement in research: Critical appraisal guidelines for assessing quality and user impact in research. Health Expect. 2010 Dec;13(4):359–68.