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Description

Sharing of research data is increasingly recognized as an important part of the research process, and can contribute to progress in research and medical care. However, this practice, which is endorsed by funders, journals, and others, has to be balanced with privacy righty when dealing with personal data. This seminar will inform you about possibilities to process and share personal data in a way which allows their reuse while also securing privacy. In addition to already existing solutions for some questions, for others the legal and technical status quo of this highly dynamic field will be presented.

Learning Goals

  • know reasons to share data and examples for reuse
  • know how to handle data protection issues when sharing patient data with collaborators
  • be acquainted with the concepts of FAIR data and interoperability
  • know principles of re-identification risk and anonymization, as well as tools for anonymisation
  • know the services and tasks of a data trust office
  • know repositories which share clinical trial data and other relevant repositories and registires
  • be acquainted with types of and structures for restricted access to data, as well as distributed and federated analyses
  • be aware of local expertise and resources

Prerequistes

No prerequisites.

Certificates

For participation in this workshop you can receive a certificate. No ECTS points.

Lecturer

OrganizerDr. Evgeny Bobrov, Project leader open data and research data managenent at the QUEST Center of the Berlin Institute of Health.

Additional lecturers:

  • Alexander Bartschke, Medical Information Manager, Core Unit Interoperability & eHealth
  • Peter Brunecker, Head of BIH IT
  • Fabian Prasser & Team members of Medical Informatics Group
  • Petra Ritter, Director of Section Brain Simulation, BIH & Dept. of Neurology and Experimental Neurology
  • Josef Schepers, Coordinator Medical Informatics, Core Unit Interoperability & eHealth
  • Joachim Weber & Team members of Data Trust Office

Important Information

Date:
Information about the next date will be published soon.

Course language: German

Location:
During the pandemic the workshop will be held online.

Registration:
Registration is closed.
The access data and details for the seminar will be sent by e-mail approximately one week before the seminar.

Contact

Dr. Evgeny Bobrov

Project leader Open Data and Research Data Management

Contact information
Phone:+49 30 450 543 069
E-mail:evgeny.bobrov@bih-charite.de