Charité PSE projects
Here you will find information on current and completed projects in the area of Patient & Stakeholder Engagement at BIH and Charité. We would also be happy to present your project on these pages. If you are interested, please contact us at any time.
Participatory research design in the RESPoNsE research practice network: the Patient Advisory Board
Since the beginning of 2022, a new advisory board has been helping to bring the perspective of lay patients into general medical research in the RESPoNsE research practice network and to shape it in a participatory manner.
Charité COVID-19 project for and with homeless people
There is a lack of information for homeless people in the Corona pandemic. In this project, a participatory approach was used to develop digital health information services on COVID-19.
Burden of disease in myasthenia gravis: taking the patient’s perspective
In this study, patients were actively involved already in the planning phase to ensure that the questions asked were relevant for them.
PAFORSE: Patient-driven research for Rare Diseases
This project was funded by a QUEST Grant for Patient & Stakeholder Engagement.
"Nothing about us without us": Establishing a Patient Think Tank with #dedoc° at Charité
This project was funded by a QUEST Grant for Patient & Stakeholder Engagement.
Developing a participatory research programme for healthy ageing in the city
This project was funded by a QUEST Grant for Patient & Stakeholder Engagement.
Translational study – what impact does chronic stress have on the sexual function of women*? (FEMstress)
This project was funded by a QUEST Grant for Patient & Stakeholder Engagement.
The Autism Research Cooperation
The Autism Research Cooperation (AFK – Autismus-Forschungs-Kooperation) is an association of autistic people and autism scientists, mainly from the Humboldt University of Berlin. The aim is to research questions jointly that are relevant for adult autistic people. In the long term, the research results should contribute to improving the quality of life of people on the autism spectrum.
The VR FestLab
The earlier adolescents start using alcohol and other drugs the more likely it is that they will abuse substances later in life. That is why alcohol prevention programmes for young people are so important.
The project "women 5.0"
The project "women 5.0 – Regional Care for Women over 49 by Outpatient Gynaecologists and General Practitioners" ("Frauen 5.0") of the Institute of General Practice at the Charité – Universitätsmedizin Berlin assessed the regional situation of health care services for women aged 50 and older in three federal states in north-eastern Germany from 2017 to the beginning of 2020.
Participatory research in the neighbourhood
At the Institute for Health and Nursing Science, Nils Merten investigated the significance of neighbourhood characteristics for health in his bachelor thesis. The focus was on the "Central Kreuzberg" neighbourhood, with the Kottbusser Tor at its centre.
The OPEN Project
In the OPEN project (Outcomes of Patients' Evidence with Novel, Do-it-Yourself Artificial Pancreas Technology), Charité has joined other academic and non-academic international partners in an interdisciplinary consortium to investigate aspects of the use of open-source artificial pancreas systems.
Planning and design of an intervention study together with stakeholders
Scientists of the research group "Complementary and Integrative Medicine" of the Institute for Social Medicine, Epidemiology and Health Economics of the Charité have investigated the effect of self-acupressure on the reduction of menstrual pain.
The Charité MS Initiative
In 2016, the Charité launched an initiative for patients with multiple sclerosis (MS). Its goal is to improve the quality of clinical MS trials and to increase patient relevance.