CArdiovascular diseases: Enhancing Healthcare through cross-sectoral Routine data integration - Ethical perspectives
CAEHR is one of the “digital Progress-Hubs” (digitaler Fortschrittshub) funded by the BMBF (Bundesministerium für Bildung und Forschung). CAEHR is a collaborative project with eight different work packages that aims at implementing products of the Medical Informatics Initiative throughout the German health care system.
Traditionally, the health care system in Germany is separated into an outpatient sector and a health care services (e.g., hospitals, university medical centers) sector with regards to data collection and storage. The approach of CAEHR consists of cross-sectoral and cross-institutional data integration with a special focus on cardiovascular diseases, because cardiovascular diseases are among the leading causes of death in Germany.
We will work on the ethical implications associated with the increased use, exchange and reliance on data in biomedicine as part of work package 1. One sub-project in work package 1 is a qualitative interview study on the reputational risks that health care providers like hospitals face when sharing patient data for secondary use.
Further information can be found here.