Quality and reporting of patient engagement

Patient engagement varies widely across studies, in which patients have an active role in the research process. However, little is known about the quality of the engagement yet. Therefore, high quality of engagement in this context can mean that patient engagement has the potential to increase the relevance and usefulness of a study for patients and the society. In order to evaluate different forms of engagement and their possible influences on a study, high quality reporting is an important prerequisite of quality assessment. We use established tools (see the links below) to analyse the quality of reporting and the quality of engagement in best practice examples for patient engagement in health research.

For more details, you can find the protocol of the study here.

Results were published in the following study:

"Reporting of patient involvement: a mixed-methods analysis of current practice in health research publications using a targeted search strategy.", Sarah Weschke, Delwen Louise Franzen, Anna Karolina Sierawska, Lea-Sophie Bonde, Daniel Strech, Susanne Gabriele Schorr BMJ Open 2023;13:e064170 10.1136/bmjopen-2022-064170

Used tools:

1. Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017 Aug 2;358:j3453.

2. Wright D, Foster C, Amir Z, Elliott J, Wilson R. Critical appraisal guidelines for assessing the quality and impact of user involvement in research: Critical appraisal guidelines for assessing quality and user impact in research. Health Expect. 2010 Dec;13(4):359–68.