Quality and reporting of patient engagement

Patient engagement, i.e. the active involvement of patients in the research process, varies widely across studies, and little is known about the quality of engagement. High quality means that the patient engagement has the potential to increase the relevance or usefulness of a study for patients and/or the society. One important prerequisite of quality assessment is high-quality reporting to compare different forms of engagement and their potential influence on studies. We use already established tools (see links below) to analyse the quality of reporting patient engagement and the quality of patient engagement in best practice examples.

For more details, you can find the protocol of the study here.

Results were published in the following study:

"Reporting of patient involvement: a mixed-methods analysis of current practice in health research publications using a targeted search strategy.", Sarah Weschke, Delwen Louise Franzen, Anna Karolina Sierawska, Lea-Sophie Bonde, Daniel Strech, Susanne Gabriele Schorr BMJ Open 2023;13:e064170 10.1136/bmjopen-2022-064170

Used tools:

1. Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017 Aug 2;358:j3453.

2. Wright D, Foster C, Amir Z, Elliott J, Wilson R. Critical appraisal guidelines for assessing the quality and impact of user involvement in research: Critical appraisal guidelines for assessing quality and user impact in research. Health Expect. 2010 Dec;13(4):359–68.