Ataxie Info Day 2026

Summary

The Berlin Institute of Health at Charité (BIH), the Charité Department of Neurology, the German Hereditary Ataxia Society (Deutsche Heredo-Ataxie-Gesellschaft e. V.), and the National Strategy for Gene and Cell-Based Therapies - represented by the BIH QUEST Center for Responsible Research and the National Network Office GCT Germany - invite you to the 1st Berlin Ataxia Information Day for people with cerebellar ataxia.

In addition to presentations on current developments in diagnosis and treatment, the interactive afternoon program aims to promote dialogue and collaboration among patients, family members, physicians, and scientists.

Program

2:00 pm   Welcome/ Introduction

2:10 pm   Gene and Cell Therapy Approaches for Cerebellar Ataxia - Prof. Dr. med. Thomas Klockgether (German Center for Neurodegenerative Diseases)

2:40 pm   Coping with and Coming to Terms with Illness Among Patients with Ataxia - Dr. med. Matthias Hoheisel (Klinik für Psychosomatische Medizin, Charité − Universitätsmedizin Berlin; Neuropsychosomatik DRK Westend – Wiegmann Klinik für Psychosomatische Medizin)

3:10 pm   Supportive Therapy in Everyday Life: Occupational Therapy/Physical Therapy - J. Koch & B. Zimmermann (Physikalische Medizin Physiotherapie und Prävention CCM, Charité)

3:40 pm   Workshop

4:30 pm   Break

5:00 pm   Workshop Recap and Outlook- Dr. Claudia Grehn (Clinical Study Center, Berlin Institute of Health at Charité (BIH))

5:10 pm   PROM with Ataxia Patients: Your Contribution - PD Dr. med. Tanja Schmitz-Hübsch (Charité Fatigue Centrum; Experimental and Clinical Research Center (ECRC) von Charité und Max Delbrück Center )

5:40 pm   Latest News on Diagnosis and Treatment
Dr. med. Astrid Nümann (Experimental and Clinical Research Center (ECRC) von Charité und Max Delbrück Center) & Dr. med. Maria Rönnefarth (Klinik für Neurologie, Charité)

5:55 pm   Farewell