Networks and Partners
PartNet
The Participatory Health Research Network (PartNet) has consisted of actors from science and practice since 2007. It promotes participatory health research in German-speaking countries, among other things by developing definitions, quality criteria and guidelines and numerous networking activities. PartNet is also a member of the International Collaboration for Participatory Health Research (ICPHR).
WG Citizen Science in Medicine and Health Research
How is Citizen Science implemented in medicine and health research? What special features, what opportunities, but also what challenges are associated with the involvement of patients and citizens in health research? In order to continuously work on these and other questions, the working group has been newly founded in 2021. Interested parties are cordially invited to learn more about the idea of the working group and the first steps and to actively participate in shaping it.
WG Quality and Impact of Engagement Processes
In this working group we want to collect different perspectives and visions on the topic "Quality and Impact of Participation Processes", e.g. which preconditions have to be given so that a successful patient engagement can succeed.
Patient & Stakeholder Engagement @Charité
Via Microsoft Teams, an exchange platform was created in which researchers at Charité who are interested in the topic of active patient involvement can network with each other and share experiences. In addition, news about PSE is shared via this platform. People with and without previous experience are welcome!
Interested persons can contact Sarah Weschke.
Berlin School of Public Engagement and Open Science
The Berlin School of Public Engagement and Open Science is part of the Public Engagement & Impact Unit at the Museum für Naturkunde Berlin. It connects research and society to make research more open, accessible and impact-orientated. The school creates incentives and opportunities for collaboration between interest groups, the public and researchers at all career levels. A core aspect is training and professional development for researchers and PE practitioners. This way, they strengthen capacities and competencies for Public Engagement and participation in Germany and worldwide.
environMENTAL – Reducing the impact of major environmental challenges on mental health
The EnvironMENTAL project investigates how some of the greatest global environmental challenges, climate change, urbanisation, and psychosocial stress caused by the COVID19-pandemic affect brain health during the lifespan, and aims to develop prevention and early intervention measures. The project has established a Stakeholder Board as part of its programme on Responsible Research and Innovation (RRI). This is to enable two-way dialogue with patients, citizens and other key stakeholders throughout the project. Sarah Weschke is part of the Stakeholder Board. The project is funded by the European Union.
KoReS – Selbsthilfefreundlichkeit und Kooperation mit der Selbsthilfe in Rehabilitations-Kliniken
The joint project “Selbsthilfefreundlichkeit und Kooperation mit der Selbsthilfe in Rehabilitations-Kliniken [Self-Help Friendliness and Cooperation with Self-Help in Rehabilitation Clinics] (KoReS)” by the Institute of Medical Sociology (IMS) at University Medical Center Hamburg-Eppendorf and the Network Self-Help Friendliness and Patient Orientation in Healthcare (SPiG, Netzwerk Selbsthilfefreundlichkeit und Patientenorientierung im Gesundheitswesen) examines the cooperation between rehabilitation clinics and self-help groups and organizations taking the concept of self-help friendliness and its quality criteria especially into account. Sarah Weschke is a member of the scientific advisory board. The project is funded by Deutsche Rentenversicherung Bund [German Federal Pension Fund].