Patient & Stakeholder Engagement
One focus of the QUEST Center is to promote the involvement of patients and other stakeholders in the planning, implementation and evaluation of research projects. To this end, we conduct research projects in order to better understand what high-quality stakeholder engagement can look like. To date, patients and other stakeholders have rarely been actively involved in research projects in Germany. We want to bring together various relevant stakeholders in order to strengthen and further develop stakeholder engagement in health research. In addition, we offer project-specific consulting services for those who wish to involve stakeholders in their specific research projects. Moreover, we are planning both training and workshop series for those interested in the BIH research area.
If you have any questions on Patient & Stakeholder Engagement, please do not hesitate to contact us. We also welcome your suggestions and needs for further support in this area.
News
Online Training „Aktive Patient*innenbeteiligung in der Gesundheitsforschung“
In 2021, the project management agency DLR Projektträger, together with the Institut für qualifizierende Innovationsforschung & -beratung (IQIB), the BIH QUEST Center and the Deutsche Arbeitsgemeinschaft Selbsthilfegruppen e.V., offered for the first time an online training course on the successful planning of active patient engagement, especially in clinical research. Due to the high level of interest, the course will now be offered regularly once or twice a year (currently only in German).
Direct link to the website of the organisers (in German)
The QUEST 1,000 € Patient & Stakeholder Engagement Award
Foster the involvement of patients and other stakeholders in the research process!
The QUEST Center supports the active engagement of patients and other stakeholders in health research (preclinical, clinical or health care research). The relevance and usefulness of research can be increased if the views and needs of patients and other stakeholders in the health care system are taken into account.
QUEST is offering this award of 1,000 € to first/last/corresponding BIH or Charité authors of publications of studies in which patients and/or other stakeholders were actively involved in the research process.
New publication
Together with the DLR Project Management Agency, we have published an introduction for (clinical) researchers on the topic of active patient engagement. The document is published open access on Zenodo.
