Sharing of research data is increasingly recognized as an important part of the research process, and can contribute to progress in research and medical care. However, this practice, which is endorsed by funders, journals, and others, has to be balanced with privacy righty when dealing with personal data. This seminar will inform you about possibilities to process and share personal data in a way which allows their reuse while also securing privacy. In addition to already existing solutions for some questions, for others the legal and technical status quo of this highly dynamic field will be presented.
Please note that the seminar will be held in German. For details on the content and speakers please see the German webpage.
Recommended Literature:
- „Whose data are they anyway?“ (NEJM, 2017)
- „Data sharing statements for clinical trials” (ICMJE Editorial, 2017)
- „Data sharing in clinical trials - practical guidance on anonymizing trial datasets” (Trials, 2018)